Summary
o Abstract
The Chinese American Coalition for Compassionate Care (CACCC), the first and only coalition
in the nation devoted to end-of-life (EOL) concerns in the Chinese community. CACCC is an
active working coalition with over 200 organizations and more than 2000 individuals.
o Introduction
Founded in 2005, incorporated and received 501(c)3 status in 2007, CACCC’s mission is to
build a community where Chinese Americans are able to face the EOL with dignity and respect.
CACCC is the nation’s first coalition dedicated to improving EOL care for Chinese Americans in
the United States, as well as the people of Taiwan and China.
CACCC was established to address the lack of linguistically and culturally appropriate EOL
information available to Chinese Americans and the lack of information for healthcare
professionals who serve them.
Since the pandemic, CACCC currently hosts all programs virtually which are conducted in
Chinese and English.
CACCC‘s priorities include producing and translating English to Chinese EOL resources and
materials; providing community education and Advance Care Planning (ACP) outreach;
conducting professional healthcare trainings; caregiver and volunteer trainings; inpatient family
conferences; patient ambassador visits through collaborations with hospitals and partner
organizations; weekly mindful caregiving stress reduction programs; mindful self-care
workshops and a new guest lecture series: “Redefining What Matters”.
o Materials
❖ Heart to Heart Cards
❖ AHCD forms
❖ EOL educational materials
❖ ACP community presentations
❖ Conversation Project Conversation Starter Kits
❖ Monthly Redefining What Matters Presentations
o Methodology
● CACCC trained facilitators conduct online EOL discussions in Chinese using Heart to
Heart® Café and Heart to Heart cards, ACP community presentations, inpatient family
conferences, and EOL educational materials. Heart to Heart Cafés are held in the
USA, Taiwan, China, Malaysia and other countries. CACCC trained volunteers provide
visits for their patients and family members where Chinese ACP materials and
education are provided.
● CACCC community presentation topics include:
❖ Advance Care Planning
❖ AHCD Workshops
❖ How to Start the Conversation
❖ Weekly Mindful Caregiving Stress Reduction
❖ Mindful Self-Care Workshops
❖ Redefining What Matters
o Results
● 100% respondents indicated they have learned how to use the Heart to Heart® cards
and Chinese Conversation Starter Kits to start the conversation.
● 70% respondents indicated the Heart to Heart Cafe made it easier for them to talk
about their wishes at the EOL.
● 100% respondents indicated they understand the importance of having an EOL care
conversation with families, loved ones and physicians.
● 100 % respondents indicated they understand the importance of ACP and plan to
complete an Advance Directive.
● 100% respondents who have attended ACP want doctors to initiate the conversation
about ACP.
● 95% respondents indicated they have learned mindful self-care tips and techniques to
practice self-care for stress reduction.
o Conclusion and Recommendations
● Collaborate and partner with hospices nationally to improve hospice and palliative
care access among Chinese Americans by utilizing Caring Connections, NHPCO
Chinese American Outreach Guide.
● Continue and maintain ongoing collaborations with partners to meet the needs of their
Chinese community.
● Engage and invite Chinese community to participate in Heart to Heart Cafes.
● Provide education on ACP.
● Provide step by step guidance on how to complete an AHCD.
● Improve the quality of life for those who participate in Heart to Heart Cafes, ACP, and
complete an AHCD.
ACP Outreach to the Chinese Community
Building a community in which Chinese Americans are able to face the end of life with dignity and respect
The Chinese American Coalition for Compassionate
Care (CACCC), the first and only coalition in the
nation devoted to end-of-life (EOL) concerns in the
Chinese community. CACCC is an active working
coalition with over 200 organizations and more than
2000 individuals.
• Heart to Heart Cards
• AHCD forms
• EOL educational materials
• ACP community presentations
• Conversation Project Conversation Starter Kits
• CACCC trained facilitators conduct online EOL discussions in Chinese using Heart to Heart® Café
and Heart to Heart cards, ACP community presentations, inpatient family conferences, and EOL
educational materials. Heart to Heart Cafés are held in the USA, Taiwan, China, (Malaysia) and
other countries.
• Community presentations are offered by CACCC on a variety of topics:
Advance Care Planning
AHCD Workshops
How to Start the Conversation
Weekly Mindful Caregiving Stress Reduction
Mindful Self-Care Workshops
Monthly Redefining What Matters Presentations
• Collaborate and partner with hospices
nationally to improve hospice and palliative
care access among Chinese Americans by
utilizing Caring Connections, NHPCO
Chinese American Outreach Guide.
• Continue and maintain ongoing
collaborations with partners to meet the
needs of their Chinese community.
• Engage and invite Chinese community to
participate in Heart to Heart Cafés.
• Provide education on ACP.
• Provide step by step guidance on how to
complete an AHCD.
• Improve the quality of life for those who
participate in Heart to Heart Cafés, ACP,
and complete an AHCD.
.
Abstract
Methodology
Conclusion and Recommendations
Materials
www.ca ccc-usa.org
Introduction
Founded in 2005, incorporated and received
501(c)3 status in 2007, CACCC’s mission is to build
a community where Chinese Americans are able to
face the EOL with dignity and respect.
Since the pandemic, CACCC currently hosts all
programs virtually which are conducted in Chinese
and English.
CACCC‘s priorities include:
• Producing and translating English to Chinese
EOL resources and materials;
• Providing community education and Advance
Care Planning (ACP) outreach;
• Conducting professional healthcare trainings;
caregiver and volunteer trainings;
• Inpatient family conferences;
• Patient ambassador visits through collaborations
with hospitals and partner organizations;
• Weekly mindful caregiving stress reduction
programs;
• Mindful self-care workshops and a new guest
lecture series: “Redefining What Matters”.
Results
•100 % respondents indicated they understand
the importance of ACP and plan to complete an
Advance Directive.
•100% respondents who have attended ACP
want doctors to initiate the conversation about
A C P.
•95% respondents indicated they have learned
mindful self-care tips and techniques to practice
self-care for stress reduction.
•100% respondents
indicated they have learned
how to use the Heart to
Heart® cards and Chinese
Conversation Starter Kits to
start the conversation.
•70% respondents indicated
the Heart to Heart Café
made it easier for them to
talk about their wishes at
the EOL.
•100% respondents
indicated they understand
the importance of having an
EOL care conversation with
families, loved ones and
physicians.
100%
Would I want my doctor
to talk to me about
Advance Care Planning
(ACP)?
Yes, I want my
doctor to initiate
the conversation
No, I do not want
my doctor to talk
about this topic
39%
44%
34% 34%
55%
27%
38%
49%
43%
32%
29%
13%
12%
18%
8%
1. I KNOW WHAT
ADVANCE CARE
PLANNING (ACP) IS
2. I KNOW WHAT
ADVANCE HEALTH
CARE DIRECTIVE
(AHCD) IS
3. I KNOW WHAT
POLST/MOLST IS
4. I KNOW WHAT
PALLIATIVE CARE IS
5. I KNOW WHAT
HOSPICE CARE IS
ACP PRESENTATION PRE-POLL
Yes Unclear No
98%
96%
94%
64%
76%
3%
3%
5%
29%
18%
1%
1%
8% 6%
1. I KNOW WHAT
ADVANCE CARE
PLANNING (ACP) IS
2. I KNOW WHAT
ADVANCE HEALTH
CARE DIRECTIVE
(AHCD) IS
3. I KNOW WHAT
POLST/MOLST IS
4. I KNOW WHAT
PALLIATIVE CARE IS
5. I KNOW WHAT
HOSPICE CARE IS
ACP PRESENTATION POST-POLL
Yes Unclear No
96%
4%
How helpful was the
content from today's
presentation?
Very helpful
Slightly helpful
Not helpful
99%
1%
I would recommend this
presentation to my
friends or family.
Yes, I would
recommend
No, I do not
recommend
ACP
PRESENTATION
FEEDBACK
* Not every ACP presentation includes explaining palliative care and hospice care
